I’m tired.
I didn’t want to wish away the summer but I finally have my people under one roof. May, June, July – -Countless immunotherapy, liver directive treatments and doctor visits and … Continue Reading I’m tired.
B2S, Pork Green Chili, more treatment planned
The yearly post of back to school pictures are all over the social feeds. Lots of comments saying, “how sad, my kids are growing to fast’ ‘please stop time’ etc. … Continue Reading B2S, Pork Green Chili, more treatment planned
Be Raw. (and recovery update)
Earlier this year (pre TIL treatment) I was at the grocery store with my kids and we were checking out. The bagger said, “I am sorry and shouldn’t ask but … Continue Reading Be Raw. (and recovery update)
Kids….talk, teach, advocate
How to talk to kids about your cancer. Being a mom of 3, I really have NO clue but what I DO know is….you take your scares, unknown ‘shit show’ … Continue Reading Kids….talk, teach, advocate
Still alive – celebration time!
5 years ago, I woke up and my gut told me something was wrong. I drove myself to the ER and Paul soon joined me. I was diagnosed with a … Continue Reading Still alive – celebration time!
Villain eye, radioactive, lesions
It’s been a while since I wrote here – unfortunately, I may be back on more to share updates as the roller coaster begins again. What I prayed would just … Continue Reading Villain eye, radioactive, lesions
The ENT
Today I went to the ENT with my 6-year-old. My poor guy has had strep several times this school year on top of other symptoms that would lead me to … Continue Reading The ENT
Hide & Seek
The kids and their friends love playing hide and seek at our house, but it’s become so competitive that we have had to outlined rules. I guess I shouldn’t be … Continue Reading Hide & Seek
Never & Forever
My six year old and I were doing our good nights and he asked when I would get my real eye back and see again. I explained, I will NEVER. … Continue Reading Never & Forever
The ‘Monster’ – I am still winning!
How do you tell your kids you have cancer? At the ages of 3,5, and 7 the ages my kids were when I was diagnosed I wasn’t sure. The ‘c’ … Continue Reading The ‘Monster’ – I am still winning!
9 eye family
I hate to admit it, but reading to my kids before bed is not my favorite thing, luckily Paul takes that. What I do love to do is lay there … Continue Reading 9 eye family
Today I turn 36!
It has driven me crazy my whole life when people complain of getting older. I guess because I am always the girl that couldn’t wait to turn a year older … Continue Reading Today I turn 36!
Foggy Glasses
I had a great follow up with my surgeon and eye team yesterday. My eye continues to stay stable. Stable is all that matters today, I will worry about tomorrow … Continue Reading Foggy Glasses
Mrs Captain Ron 