Uncharted Waters
I have kept a personal journal regarding my Dx, journey, struggles, thoughts, feelings and always contemplated sharing. I believe now may be that time. I am forever grateful to those … Continue Reading Uncharted Waters
The ENT
Today I went to the ENT with my 6-year-old. My poor guy has had strep several times this school year on top of other symptoms that would lead me to … Continue Reading The ENT
Hide & Seek
The kids and their friends love playing hide and seek at our house, but it’s become so competitive that we have had to outlined rules. I guess I shouldn’t be … Continue Reading Hide & Seek
Never & Forever
My six year old and I were doing our good nights and he asked when I would get my real eye back and see again. I explained, I will NEVER. … Continue Reading Never & Forever
My Aura made me sick
I would consider myself a positive person but my quarterly scans change me. I am irritable, sensitive, and struggle to be at peace with everything in my life. In the … Continue Reading My Aura made me sick
2 Years & Advocacy
Two years ago, I fell to the floor unable to physically pick myself up, unable to stop my tears from pouring down my face and unable to stop my heart from … Continue Reading 2 Years & Advocacy
Remembering a year ago and the 20%
A year ago today, Marjory Stoneman Douglas High School in Parkland, FL was added to the already way too long list of horrific school shootings. This event hit home as … Continue Reading Remembering a year ago and the 20%
I can’t stop smiling!
So far 2019 has exceeded my expectations and I am enjoying the peak. I learned to enjoy the peaks as you never know when a valley might come SO talk … Continue Reading I can’t stop smiling!
The ‘Monster’ – I am still winning!
How do you tell your kids you have cancer? At the ages of 3,5, and 7 the ages my kids were when I was diagnosed I wasn’t sure. The ‘c’ … Continue Reading The ‘Monster’ – I am still winning!
9 eye family
I hate to admit it, but reading to my kids before bed is not my favorite thing, luckily Paul takes that. What I do love to do is lay there … Continue Reading 9 eye family
Today I turn 36!
It has driven me crazy my whole life when people complain of getting older. I guess because I am always the girl that couldn’t wait to turn a year older … Continue Reading Today I turn 36!
Pray time – 3rd times a charm!
Today I woke up numb (again) at what my day had in store – but could vividly hear the crazy morning shuffle. I think Paul told the boys to eat … Continue Reading Pray time – 3rd times a charm!
{Flashback} Surgery: The first of many Silver lings – San Fran bound!
For a while my mom, sister and I wanted to do a girl’s trip, but the time was never ‘just’ right. Life kept happening…all good things but just never the … Continue Reading {Flashback} Surgery: The first of many Silver lings – San Fran bound!
{Flashback} It’s official, I have cancer
Two days after being told I have cancer in my eye – I remember waking up optimistically numb. My parents had arrived and Paul, mom, dad and I headed over … Continue Reading {Flashback} It’s official, I have cancer
The Beginning: {Flashback} SHOCK, NUMB, WHAT? You are looking in my eye
Many ask, how did I know something was wrong? How did I know what to do? How was I diagnosed? March 19, 2017 – it was an amazing day in … Continue Reading The Beginning: {Flashback} SHOCK, NUMB, WHAT? You are looking in my eye
Foggy Glasses
I had a great follow up with my surgeon and eye team yesterday. My eye continues to stay stable. Stable is all that matters today, I will worry about tomorrow … Continue Reading Foggy Glasses
One eye down, the pain was gone (I thought) but back to uncharted waters.
It’s crazy how you become so focused or distracted on something but then something far worse hits. Many say the hardest part of living with cancer or really just living … Continue Reading One eye down, the pain was gone (I thought) but back to uncharted waters.
