Recap: my largest liver lesion was removed in Sept, 2022. Scans in Oct were stable and went into holding pattern. I learned my Tcells grew very potent which was best … Continue Reading Current state: Leukapheresis
How to talk to kids about your cancer. Being a mom of 3, I really have NO clue but what I DO know is….you take your scares, unknown ‘shit show’ … Continue Reading Kids….talk, teach, advocate
Finally feeling human. One of these surgeries (I’ve had so many the past 5 years – to be honest I lost track of the exact number) I’ll actually listen to … Continue Reading I kept waiting for the BUT
Last night Paul and I arrived back home. Felt good to be around my folks and the kids. Luckily the flight was uneventful. I have been beyond fortunate to have … Continue Reading Leaving UPMC w/ a 5 Star Review
9/23/22 was FUF day! The Fer is out along with some smaller lesions around that area that were not previously seen on my last MRI. It’s really amazing they are … Continue Reading FUF (s) !
On September 15th, 2022 Paul and I co-chaired the 11th annual Melanoma Research Foundations annual gala in Denver. This was our 3rd time co-chairing this amazing event and raising the … Continue Reading PROGRESS is POWER … Current vibe = HOPE
Lots of updates – I’ve been busy…crying, laughing, throwing stuff at the wall, living my best life and feeling so low and high – seriously all in the same hour … Continue Reading Where did May, June, July and August go ?
I quickly learned the seriousness and how aggressive and ruthless my disease, ocular melanoma, was after diagnosis. Knowing this for 4.5 years I celebrated each clean scan so much. I … Continue Reading So much HOPE, So much SORROW
5 years ago, I woke up and my gut told me something was wrong. I drove myself to the ER and Paul soon joined me. I was diagnosed with a … Continue Reading Still alive – celebration time!
As hard as I try, I still can’t properly manage the rollcoaster emotions most days as it is so hard to process gratitude yet sadness and fear in one thought. … Continue Reading Luck, prayers, thanks!
The decision seemed quite easy on what do once metastatic disease appeared in my liver. Luckily there are currently many options but deciding the best is looking at the number … Continue Reading Battle mode activated – I’ve been embolized.
The day, week, really the whole month after finding out I officially have mets (metastasis) to my liver has been nothing short of an emotional roller coaster. Overnight, I went … Continue Reading Battle plan set, gearing up.￼
I heard the news I prayed would never come but with my disease I knew it was always a matter of when NOT if. Knowing your possible future is scary … Continue Reading CONFIRMED
It’s been a while since I wrote here – unfortunately, I may be back on more to share updates as the roller coaster begins again. What I prayed would just … Continue Reading Villain eye, radioactive, lesions