I have kept a personal journal regarding my Dx, journey, struggles, thoughts, feelings and always contemplated sharing. I believe now may be that time. I am forever grateful to those that have shared their stories before me and how they have impacted my life.
I want to provide updates regarding me, my treatments and why I am making the decisions I make. The eyeball – as Caden says it best, is creepy. It’s in the creepy category as cats are for him, lol, so I truly get what he means. But why are eyeballs creepy to many of us? Is it because it’s how society portrays them in pics of pirates (the glass eye), the wacky lady in movies has the wacky eye, it’s not everyday your sister or friend has her eyeball removed, is it the unknown? I have learned a lot since my Dx and even more so recently with enucleation and I need to somehow overcome any stereo type I personally have and others may now have of me. My Dx, my journey, my treatment and my care plan is truly rare (I will explain how rare in future post) but truly scientifically fascinating and the support from my OM community, OM provider team, many of you reading this (closest family and friends) it is overwhelming unbelievable. I’d like to depict my thoughts on creepy, rare, and many of the unknowns.
Like Captain Ron, we as OMies often go down the path of uncharted waters. So here I go continuing down uncharted waters…I plan to start updating on the present, eventually add throw backs of my journey to get me to where I am to date and then throw in my views of the world and how things have changed through my new lens; my OM lens, my new prosthetic lens, and how me, ‘Linds’, has grown and changed learning everyday to love her new self. It hasn’t been easy, it’s still not easy, but my number 1 priority is being here. I am here. My life is too good to not figure it out as I don’t want to miss out on this thing called ‘LIFE’.
#mrscaptainron #youcantakemysightbutyoucanttakemyvision #FUOM #seriouslyFUOM